Desperately Lonely Swing Set Needs Loving Home 11 page

“Oh, you meant it,” he interrupted. I started to apologize and he said, “No, I’m sorry. You’re right. Let’s just play.” So we just played.

CHAPTER EIGHTEEN

Iwoke up to my phone singing a song by The Hectic Glow. Gus’s favorite. That meant he was calling—or someone was calling from his phone. I glanced at the alarm clock: 2:35 A.M. He’s gone, I thought as everything inside of me collapsed into a singularity.

I could barely creak out a “Hello?”

I waited for the sound of a parent’s annihilated voice. “Hazel Grace,” Augustus said weakly.

“Oh, thank God it’s you. Hi. Hi, I love you.”

“Hazel Grace, I’m at the gas station. Something’s wrong. You gotta help me.” “What? Where are you?”

“The Speedway at Eighty-sixth and Ditch. I did something wrong with the G-tube and I can’t figure it out and—” “I’m calling nine-one-one,” I said.

“No no no no no, they’ll take me to a hospital. Hazel, listen to me. Do not call nine-one-one or my parents I will never forgive you don’t please just come please just come and fix my goddamned G-tube. I’m just, God, this is the stupidest thing. I don’t want my parents to know I’m gone. Please. I have the medicine with me; I just can’t get it in. Please.” He was crying. I’d never heard him sob like this except from outside his house before Amsterdam.

“Okay,” I said. “I’m leaving now.”

I took the BiPAP off and connected myself to an oxygen tank, lifted the tank into my cart, and put on sneakers to go with my pink cotton pajama pants and a Butler basketball T-shirt, which had originally been Gus’s. I grabbed the keys from the kitchen drawer where Mom kept them and wrote a note in case they woke up while I was gone.

Went to check on Gus. It’s important. Sorry. Love, H

As I drove the couple miles to the gas station, I woke up enough to wonder why Gus had left the house in the middle of the night. Maybe he’d been hallucinating, or his martyrdom fantasies had gotten the better of him.

I sped up Ditch Road past flashing yellow lights, going too fast partly to reach him and partly in the hopes a cop would pull me over and give me an excuse to tell someone that my dying boyfriend was stuck outside of a gas station with a malfunctioning G-tube. But no cop showed up to make my decision for me.

There were only two cars in the lot. I pulled up next to his. I opened the door. The interior lights came on. Augustus sat in the driver’s seat, covered in his own vomit, his hands pressed to his belly where the G-tube went in. “Hi,” he mumbled.

“Oh, God, Augustus, we have to get you to a hospital.”

“Please just look at it.” I gagged from the smell but bent forward to inspect the place above his belly button where they’d surgically installed the tube. The skin of his abdomen was warm and bright red.

“Gus, I think something’s infected. I can’t fix this. Why are you here? Why aren’t you at home?” He puked, without even the energy to turn his mouth away from his lap. “Oh, sweetie,” I said.

“I wanted to buy a pack of cigarettes,” he mumbled. “I lost my pack. Or they took it away from me. I don’t know. They said they’d get me another one, but I wanted . . . to do it myself. Do one little thing myself.”

He was staring straight ahead. Quietly, I pulled out my phone and glanced down to dial 911.

“I’m sorry,” I told him. Nine-one-one, what is your emergency? “Hi, I’m at the Speedway at Eighty-sixth and Ditch, and I need an ambulance. The great love of my life has a malfunctioning G-tube.”

He looked up at me. It was horrible. I could hardly look at him. The Augustus Waters of the crooked smiles and unsmoked cigarettes was gone, replaced by this desperate humiliated creature sitting there beneath me.

“This is it. I can’t even not smoke anymore.” “Gus, I love you.”

“Where is my chance to be somebody’s Peter Van Houten?” He hit the steering wheel weakly, the car honking as he cried. He leaned his head back, looking up. “I hate myself I hate myself I hate this I hate this I disgust myself I hate it I hate it I hate it just let me fucking die.”

According to the conventions of the genre, Augustus Waters kept his sense of humor till the end, did not for a moment waiver in his courage, and his spirit soared like an indomitable eagle until the world itself could not contain his joyous soul.

But this was the truth, a pitiful boy who desperately wanted not to be pitiful, screaming and crying, poisoned by an infected G-tube that kept him alive, but not alive enough.

I wiped his chin and grabbed his face in my hands and knelt down close to him so that I could see his eyes, which still lived. “I’m sorry. I wish it was like that movie, with the Persians and the Spartans.”

“Me too,” he said. “But it isn’t,” I said. “I know,” he said.

“There are no bad guys.” “Yeah.”

“Even cancer isn’t a bad guy really: Cancer just wants to be alive.” “Yeah.”

“You’re okay,” I told him. I could hear the sirens. “Okay,” he said. He was losing consciousness.

“Gus, you have to promise not to try this again. I’ll get you cigarettes, okay?” He looked at me. His eyes swam in their sockets. “You have to promise.” He nodded a little and then his eyes closed, his head swiveling on his neck.

“Gus,” I said. “Stay with me.”

“Read me something,” he said as the goddamned ambulance roared right past us. So while I waited for them to turn around and find us, I recited the

only poem I could bring to mind, “The Red Wheelbarrow” by William Carlos Williams.

so much depends upon

a red wheel barrow

glazed with rain water

beside the white chickens.

it.

Williams was a doctor. It seemed to me like a doctor’s poem. The poem was over, but the ambulance was still driving away from us, so I kept writing

* * *

And so much depends, I told Augustus, upon a blue sky cut open by the branches of the trees above. So much depends upon the transparent G-tube erupting from the gut of the blue-lipped boy. So much depends upon this observer of the universe.

Half conscious, he glanced over at me and mumbled, “And you say you don’t write poetry.”

CHAPTER NINETEEN

He came home from the hospital a few days later, finally and irrevocably robbed of his ambitions. It took more medication to remove him from the pain. He moved upstairs permanently, into a hospital bed near the living room window.

These were days of pajamas and beard scruff, of mumblings and requests and him endlessly thanking everyone for all they were doing on his behalf.

One afternoon, he pointed vaguely toward a laundry basket in a corner of the room and asked me, “What’s that?” “That laundry basket?”

“No, next to it.”

“I don’t see anything next to it.”

“It’s my last shred of dignity. It’s very small.”

* * *

The next day, I let myself in. They didn’t like me to ring the doorbell anymore because it might wake him up. His sisters were there with their banker husbands and three kids, all boys, who ran up to me and chanted who are you who are you who are you, running circles around the entryway like lung capacity was a renewable resource. I’d met the sisters before, but never the kids or their dads.

“I’m Hazel,” I said.

“Gus has a girlfriend,” one of the kids said.

“I am aware that Gus has a girlfriend,” I said. “She’s got boobies,” another said.

“Is that so?”

“Why do you have that?” the first one asked, pointing at my oxygen cart. “It helps me breathe,” I said. “Is Gus awake?”

“No, he’s sleeping.”

“He’s dying,” said another.

“He’s dying,” the third one confirmed, suddenly serious. It was quiet for a moment, and I wondered what I was supposed to say, but then one of them kicked another and they were off to the races again, falling all over each other in a scrum that migrated toward the kitchen.

I made my way to Gus’s parents in the living room and met his brothers-in-law, Chris and Dave.

I hadn’t gotten to know his half sisters, really, but they both hugged me anyway. Julie was sitting on the edge of the bed, talking to a sleeping Gus in precisely the same voice that one would use to tell an infant he was adorable, saying, “Oh, Gussy Gussy, our little Gussy Gussy.” Our Gussy? Had they acquired him?

“What’s up, Augustus?” I said, trying to model appropriate behavior.

“Our beautiful Gussy,” Martha said, leaning in toward him. I began to wonder if he was actually asleep or if he’d just laid a heavy finger on the pain pump to avoid the Attack of the Well-Meaning Sisters.

He woke up after a while and the first thing he said was, “Hazel,” which I have to admit made me kind of happy, like maybe I was part of his family, too. “Outside,” he said quietly. “Can we go?”

We went, his mom pushing the wheelchair, sisters and brothers-in-law and dad and nephews and me trailing. It was a cloudy day, still and hot as summer settled in. He wore a long-sleeve navy T-shirt and fleece sweatpants. He was cold all the time for some reason. He wanted some water, so his dad went and got some for him.

Martha tried to engage Gus in conversation, kneeling down next to him and saying, “You’ve always had such beautiful eyes.” He nodded a little. One of the husbands put an arm on Gus’s shoulder and said, “How’s that fresh air feel?” Gus shrugged.

“Do you want meds?” his mom asked, joining the circle kneeling around him. I took a step back, watching as the nephews tore through a flower bed on their way to the little patch of grass in Gus’s backyard. They immediately commenced to play a game that involved throwing one another to the ground.

“Kids!” Julie shouted vaguely.

“I can only hope,” Julie said, turning back to Gus, “they grow into the kind of thoughtful, intelligent young men you’ve become.” I resisted the urge to audibly gag. “He’s not that smart,” I said to Julie.

“She’s right. It’s just that most really good-looking people are stupid, so I exceed expectations.” “Right, it’s primarily his hotness,” I said.

“It can be sort of blinding,” he said.

“It actually did blind our friend Isaac,” I said.

“Terrible tragedy, that. But can I help my own deadly beauty?” “You cannot.”

“It is my burden, this beautiful face.” “Not to mention your body.”

“Seriously, don’t even get me started on my hot bod. You don’t want to see me naked, Dave. Seeing me naked actually took Hazel Grace’s breath away,” he said, nodding toward the oxygen tank.

“Okay, enough,” Gus’s dad said, and then out of nowhere, his dad put an arm around me and kissed the side of my head and whispered, “I thank

God for you every day, kid.”

Anyway, that was the last good day I had with Gus until the Last Good Day.

CHAPTER TWENTY

One of the less bullshitty conventions of the cancer kid genre is the Last Good Day convention, wherein the victim of cancer finds herself with some unexpected hours when it seems like the inexorable decline has suddenly plateaued, when the pain is for a moment bearable. The problem, of course, is that there’s no way of knowing that your last good day is your Last Good Day. At the time, it is just another good day.

I’d taken a day off from visiting Augustus because I was feeling a bit unwell myself: nothing specific, just tired. It had been a lazy day, and when

Augustus called just after five P.M., I was already attached to the BiPAP, which we’d dragged out to the living room so I could watch TV with Mom and Dad. “Hi, Augustus,” I said.

He answered in the voice I’d fallen for. “Good evening, Hazel Grace. Do you suppose you could find your way to the Literal Heart of Jesus around eight P.M.?”

“Um, yes?”

“Excellent. Also, if it’s not too much trouble, please prepare a eulogy.” “Um,” I said.

“I love you,” he said.

“And I you,” I answered. Then the phone clicked off.

“Um,” I said. “I have to go to Support Group at eight tonight. Emergency session.” My mom muted the TV. “Is everything okay?”

I looked at her for a second, my eyebrows raised. “I assume that’s a rhetorical question.” “But why would there—”

“Because Gus needs me for some reason. It’s fine. I can drive.” I fiddled with the BiPAP so Mom would help me take it off, but she didn’t. “Hazel,” she said, “your dad and I feel like we hardly even see you anymore.”

“Particularly those of us who work all week,” Dad said.

“He needs me,” I said, finally unfastening the BiPAP myself.

“We need you, too, kiddo,” my dad said. He took hold of my wrist, like I was a two-year-old about to dart out into the street, and gripped it. “Well, get a terminal disease, Dad, and then I’ll stay home more.”

“Hazel,” my mom said.

“You were the one who didn’t want me to be a homebody,” I said to her. Dad was still clutching my arm. “And now you want him to go ahead and die so I’ll be back here chained to this place, letting you take care of me like I always used to. But I don’t need it, Mom. I don’t need you like I used to. You’re the one who needs to get a life.”

“Hazel!” Dad said, squeezing harder. “Apologize to your mother.”

I was tugging at my arm but he wouldn’t let go, and I couldn’t get my cannula on with only one hand. It was infuriating. All I wanted was an old- fashioned Teenager Walkout, wherein I stomp out of the room and slam the door to my bedroom and turn up The Hectic Glow and furiously write a eulogy. But I couldn’t because I couldn’t freaking breathe. “The cannula,” I whined. “I need it.”

My dad immediately let go and rushed to connect me to the oxygen. I could see the guilt in his eyes, but he was still angry. “Hazel, apologize to your mother.”

“Fine, I’m sorry, just please let me do this.”

They didn’t say anything. Mom just sat there with her arms folded, not even looking at me. After a while, I got up and went to my room to write about

Augustus.

Both Mom and Dad tried a few times to knock on the door or whatever, but I just told them I was doing something important. It took me forever to figure out what I wanted to say, and even then I wasn’t very happy with it. Before I’d technically finished, I noticed it was 7:40, which meant that I would be late even if I didn’t change, so in the end I wore baby blue cotton pajama pants, flip-flops, and Gus’s Butler shirt.

I walked out of the room and tried to go right past them, but my dad said, “You can’t leave the house without permission.”

“Oh, my God, Dad. He wanted me to write him a eulogy, okay? I’ll be home every. Freaking. Night. Starting any day now, okay?” That finally shut them up.

It took the entire drive to calm down about my parents. I pulled up around the back of the church and parked in the semicircular driveway behind Augustus’s car. The back door to the church was held open by a fist-size rock. Inside, I contemplated taking the stairs but decided to wait for the ancient creaking elevator.

When the elevator doors unscrolled, I was in the Support Group room, the chairs arranged in the same circle. But now I saw only Gus in a wheelchair, ghoulishly thin. He was facing me from the center of the circle. He’d been waiting for the elevator doors to open.

“Hazel Grace,” he said, “you look ravishing.” “I know, right?”

I heard a shuffling in a dark corner of the room. Isaac stood behind a little wooden lectern, clinging to it. “You want to sit?” I asked him. “No, I’m about to eulogize. You’re late.”

“You’re . . . I’m . . . what?”

Gus gestured for me to sit. I pulled a chair into the center of the circle with him as he spun the chair to face Isaac. “I want to attend my funeral,” Gus said. “By the way, will you speak at my funeral?”

“Um, of course, yeah,” I said, letting my head fall onto his shoulder. I reached across his back and hugged both him and the wheelchair. He winced. I

let go.

“Awesome,” he said. “I’m hopeful I’ll get to attend as a ghost, but just to make sure, I thought I’d—well, not to put you on the spot, but I just this afternoon thought I could arrange a prefuneral, and I figured since I’m in reasonably good spirits, there’s no time like the present.”

“How did you even get in here?” I asked him.

“Would you believe they leave the door open all night?” Gus asked. “Um, no,” I said.

“As well you shouldn’t.” Gus smiled. “Anyway, I know it’s a bit self-aggrandizing.”

“Hey, you’re stealing my eulogy,” Isaac said. “My first bit is about how you were a self-aggrandizing bastard.” I laughed.

“Okay, okay,” Gus said. “At your leisure.”

Isaac cleared his throat. “Augustus Waters was a self-aggrandizing bastard. But we forgive him. We forgive him not because he had a heart as figuratively good as his literal one sucked, or because he knew more about how to hold a cigarette than any nonsmoker in history, or because he got eighteen years when he should have gotten more.”

“Seventeen,” Gus corrected.

“I’m assuming you’ve got some time, you interrupting bastard.

“I’m telling you,” Isaac continued, “Augustus Waters talked so much that he’d interrupt you at his own funeral. And he was pretentious: Sweet Jesus Christ, that kid never took a piss without pondering the abundant metaphorical resonances of human waste production. And he was vain: I do not believe I have ever met a more physically attractive person who was more acutely aware of his own physical attractiveness.

“But I will say this: When the scientists of the future show up at my house with robot eyes and they tell me to try them on, I will tell the scientists to screw off, because I do not want to see a world without him.”

I was kind of crying by then.

“And then, having made my rhetorical point, I will put my robot eyes on, because I mean, with robot eyes you can probably see through girls’ shirts and stuff. Augustus, my friend, Godspeed.”

Augustus nodded for a while, his lips pursed, and then gave Isaac a thumbs-up. After he’d recovered his composure, he added, “I would cut the bit about seeing through girls’ shirts.”

Isaac was still clinging to the lectern. He started to cry. He pressed his forehead down to the podium and I watched his shoulders shake, and then finally, he said, “Goddamn it, Augustus, editing your own eulogy.”

“Don’t swear in the Literal Heart of Jesus,” Gus said.

“Goddamn it,” Isaac said again. He raised his head and swallowed. “Hazel, can I get a hand here?”

I’d forgotten he couldn’t make his own way back to the circle. I got up, placed his hand on my arm, and walked him slowly back to the chair next to

Gus where I’d been sitting. Then I walked up to the podium and unfolded the piece of paper on which I’d printed my eulogy.

“My name is Hazel. Augustus Waters was the great star-crossed love of my life. Ours was an epic love story, and I won’t be able to get more than a sentence into it without disappearing into a puddle of tears. Gus knew. Gus knows. I will not tell you our love story, because—like all real love stories—it will die with us, as it should. I’d hoped that he’d be eulogizing me, because there’s no one I’d rather have . . .” I started crying. “Okay, how not to cry. How am I—okay. Okay.”

I took a few breaths and went back to the page. “I can’t talk about our love story, so I will talk about math. I am not a mathematician, but I know this: There are infinite numbers between 0 and 1. There’s .1 and .12 and .112 and an infinite collection of others. Of course, there is a bigger infinite set of numbers between 0 and 2, or between 0 and a million. Some infinities are bigger than other infinities. A writer we used to like taught us that. There are days, many of them, when I resent the size of my unbounded set. I want more numbers than I’m likely to get, and God, I want more numbers for Augustus Waters than he got. But, Gus, my love, I cannot tell you how thankful I am for our little infinity. I wouldn’t trade it for the world. You gave me a forever within the numbered days, and I’m grateful.”

CHAPTER TWENTY-ONE

Augustus Waters died eight days after his prefuneral, at Memorial, in the ICU, when the cancer, which was made of him, finally stopped his heart, which was also made of him.

He was with his mom and dad and sisters. His mom called me at three thirty in the morning. I’d known, of course, that he was going. I’d talked to his

dad before going to bed, and he told me, “It could be tonight,” but still, when I grabbed the phone from the bedside table and saw Gus’s Mom on the caller ID, everything inside of me collapsed. She was just crying on the other end of the line, and she told me she was sorry, and I said I was sorry, too, and she told me that he was unconscious for a couple hours before he died.

My parents came in then, looking expectant, and I just nodded and they fell into each other, feeling, I’m sure, the harmonic terror that would in time come for them directly.

I called Isaac, who cursed life and the universe and God Himself and who said where are the goddamned trophies to break when you need them, and then I realized there was no one else to call, which was the saddest thing. The only person I really wanted to talk to about Augustus Waters’s death was Augustus Waters.

My parents stayed in my room forever until it was morning and finally Dad said, “Do you want to be alone?” and I nodded and Mom said, “We’ll be right outside the door,” me thinking, I don’t doubt it.

It was unbearable. The whole thing. Every second worse than the last. I just kept thinking about calling him, wondering what would happen, if anyone would answer. In the last weeks, we’d been reduced to spending our time together in recollection, but that was not nothing: The pleasure of remembering had been taken from me, because there was no longer anyone to remember with. It felt like losing your co-rememberer meant losing the memory itself, as if

the things we’d done were less real and important than they had been hours before.

* * *

When you go into the ER, one of the first things they ask you to do is to rate your pain on a scale of one to ten, and from there they decide which drugs to use and how quickly to use them. I’d been asked this question hundreds of times over the years, and I remember once early on when I couldn’t get my breath and it felt like my chest was on fire, flames licking the inside of my ribs fighting for a way to burn out of my body, my parents took me to the ER. A nurse asked me about the pain, and I couldn’t even speak, so I held up nine fingers.

Later, after they’d given me something, the nurse came in and she was kind of stroking my hand while she took my blood pressure and she said, “You know how I know you’re a fighter? You called a ten a nine.”

But that wasn’t quite right. I called it a nine because I was saving my ten. And here it was, the great and terrible ten, slamming me again and again as I lay still and alone in my bed staring at the ceiling, the waves tossing me against the rocks then pulling me back out to sea so they could launch me again into the jagged face of the cliff, leaving me floating faceup on the water, undrowned.

Finally I did call him. His phone rang five times and then went to voice mail. “You’ve reached the voice mail of Augustus Waters,” he said, the clarion voice I’d fallen for. “Leave a message.” It beeped. The dead air on the line was so eerie. I just wanted to go back to that secret post-terrestrial third space with him that we visited when we talked on the phone. I waited for that feeling, but it never came: The dead air on the line was no comfort, and finally I hung up.

I got my laptop out from under the bed and fired it up and went onto his wall page, where already the condolences were flooding in. The most recent one said:

I love you, bro. See you on the other side.

. . . Written by someone I’d never heard of. In fact, almost all the wall posts, which arrived nearly as fast as I could read them, were written by people I’d never met and whom he’d never spoken about, people who were extolling his various virtues now that he was dead, even though I knew for a fact they hadn’t seen him in months and had made no effort to visit him. I wondered if my wall would look like this if I died, or if I’d been out of school and life long enough to escape widespread memorialization.

I kept reading.

I miss you already, bro.

I love you, Augustus. God bless and keep you. You’ll live forever in our hearts, big man.

(That particularly galled me, because it implied the immortality of those left behind: You will live forever in my memory, because I will live forever! I AM YOUR GOD NOW, DEAD BOY! I OWN YOU! Thinking you won’t die is yet another side effect of dying.)

You were always such a great friend I’m sorry I didn’t see more of you after you left school, bro. I bet you’re already playing ball in heaven.

I imagined the Augustus Waters analysis of that comment: If I am playing basketball in heaven, does that imply a physical location of a heaven containing physical basketballs? Who makes the basketballs in question? Are there less fortunate souls in heaven who work in a celestial basketball factory so that I can play? Or did an omnipotent God create the basketballs out of the vacuum of space? Is this heaven in some kind of unobservable universe where the laws of physics don’t apply, and if so, why in the hell would I be playing basketball when I could be flying or reading or looking at beautiful people or something else I actually enjoy? It’s almost as if the way you imagine my dead self says more about you than it says about either the person I was or the whatever I am now.

His parents called around noon to say the funeral would be in five days, on Saturday. I pictured a church packed with people who thought he liked basketball, and I wanted to puke, but I knew I had to go, since I was speaking and everything. When I hung up, I went back to reading his wall:

Just heard that Gus Waters died after a lengthy battle with cancer. Rest in peace, buddy.

I knew these people were genuinely sad, and that I wasn’t really mad at them. I was mad at the universe. Even so, it infuriated me: You get all these friends just when you don’t need friends anymore. I wrote a reply to his comment:

We live in a universe devoted to the creation, and eradication, of awareness. Augustus Waters did not die after a lengthy battle with cancer. He died after a lengthy battle with human consciousness, a victim—as you will be—of the universe’s need to make and unmake all that is possible.

I posted it and waited for someone to reply, refreshing over and over again. Nothing. My comment got lost in the blizzard of new posts. Everyone was going to miss him so much. Everyone was praying for his family. I remembered Van Houten’s letter: Writing does not resurrect. It buries.

* * *

After a while, I went out into the living room to sit with my parents and watch TV. I couldn’t tell you what the show was, but at some point, my mom said, “Hazel, what can we do for you?”

And I just shook my head. I started crying again. “What can we do?” Mom asked again.

I shrugged.

But she kept asking, as if there were something she could do, until finally I just kind of crawled across the couch into her lap and my dad came over and held my legs really tight and I wrapped my arms all the way around my mom’s middle and they held on to me for hours while the tide rolled in.

CHAPTER TWENTY-TWO

When we first got there, I sat in the back of the visitation room, a little room of exposed stone walls off to the side of the sanctuary in the Literal Heart of

Jesus church. There were maybe eighty chairs set up in the room, and it was two-thirds full but felt one-third empty.

For a while, I just watched people walk up to the coffin, which was on some kind of cart covered in a purple tablecloth. All these people I’d never seen before would kneel down next to him or stand over him and look at him for a while, maybe crying, maybe saying something, and then all of them would touch the coffin instead of touching him, because no one wants to touch the dead.

Gus’s mom and dad were standing next to the coffin, hugging everybody as they passed by, but when they noticed me, they smiled and shuffled over. I got up and hugged first his dad and then his mom, who held on to me too tight, like Gus used to, squeezing my shoulder blades. They both looked so old

Date: 2015-12-17; view: 540